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United to Conquer Sickle Cell Disease

Sickle Cell Disease Coalition

We're committed to conquering SCD.

Learn how we’re tackling it:

  • access to care in the U.S.

    In the United States, access to appropriate care is limited by a number of critical factors.

  • Training and professional education

    There are not enough health care providers with comprehensive knowledge and expertise to care for people with sickle cell disease.

  • Research and clinical trials

    The majority of available treatments manage symptoms of the disease, rather than treating the underlying cause of sickling.

  • global issues

    Sickle cell disease is a major killer of infants and children in the developing world, especially in Africa and India where the disease is more common.

When a doctor does understand sickle cell disease, . . . the care is superb.

— Patient with sickle cell disease
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What is Sickle Cell Disease?

Sickle Cell Disease is an inherited blood disorder that causes red blood cells to form into a crescent shape, like a sickle. These cells break apart easily, clump together, and stick to the walls of blood vessels, blocking the flow of blood, which can lead to a range of serious health issues.

Learn More

Find Resources

Explore our resource library for helpful tools on sickle cell disease.

For Patients For Providers For Researchers

Our Members

The Sickle Cell Disease Coalition is composed of public health, research, and provider organizations, patient groups, faith-based organizations, federal agencies, industry representatives, and foundations with an interest in Sickle Cell Disease.

*Member belongs to the Steering Committee.

It’s time that we unite to conquer
sickle cell disease. Learn About Membership